I looked at the date today and had a somewhat startling realization. Violet hasn’t gotten sick in over a month. If memory serves, which I admit it doesn’t always, I believe this is the longest period of time in her entire life that she has gone without throwing up.
People often ask how she is doing, and I never know what to say. I still have a fear of sounding overdramatic, but I also don’t want to marginalize the way she is feeling by acting like everything is fine. She’s “doing better,” but she still gets sick.
For those of you who don’t know much about cyclic vomiting syndrome, it’s not uncommon for kids who have it to get sick on a schedule. They call them “calendar kids.” Violet is definitely a calendar kid. As odd as it sounds, she most frequently gets sick every two weeks and two days. Sometimes it’s less (she had a month where she got sick every Wednesday) and sometimes it’s more (she has gone three weeks a few times). But her most common gap between the first day of one episode, and the first day of the next episode is 16 days.
Ladies, gentleman, and spambots who stumble across this page in the future while attempting to boost their SEO, we’re at 35 days right now. 35 days.
She’s been “doing better” since she started taking medication almost a year ago (cyproheptadine for my fellow CVS moms that are wondering). But for the last year “doing better” has still meant that she was sick every two weeks, just not nearly as miserable while sick. Before medicine she would writhe around in pain or act nearly comatose during her 4 day episodes. Since starting medicine she still doesn’t feel well, but has been much more functional. But this is the first time ever that she has entirely “skipped” episodes.
She’s done so much these last few weeks without an episode to hold her back. She’s officially potty trained. She’s a skating pro (and by pro I mean she likes her bubba to hold her and lead her around). She’s even started toting a big round toddler belly. It has me feeling so hopeful for the future. Maybe she really will outgrow all of this. Maybe school and life and everything will be just fine.
I mean, of course everything will be fine either way. But I’m just happy that this week, this month, this year so far, she is doing so well.
(Yes, the wood has been knocked on and yes I am half expecting a text from the babysitter to come through as soon as I hit the publish button.)